Nick, 53, has spent more than 25 years navigating the physical and emotional challenges of multiple sclerosis since being diagnosed in 2000. Even before his diagnosis, he sensed something was wrong. In the late 1990s, Nick began experiencing vision problems. At the time, he was working as a mechanic and he worried about his safety and the safety of others. One day, after developing double vision, he drove straight to his doctor with one eye closed just to see clearly enough to get there. He was diagnosed with MS and given medication that relieved his symptoms. He felt both grateful and validated, knowing his concerns were real and not imagined.
Nick had always been physically fit and even served in the U.S. Army. But MS gradually changed his abilities: He started experiencing weakness in his legs, difficulty walking, and challenges with speech. It was a difficult adjustment for someone who had always been active.
Eventually, Nick’s symptoms progressed and walking became more difficult. He knew it was time to explore new options, and at his doctor’s recommendation, sought care at Holy Name. There he met Dr. Mary Ann Picone, Medical Director of Holy Name’s MS Center. Nick was evaluated and deemed a strong candidate for a clinical trial testing a new MS medication. After completing a series of physical, neurological, and vision assessments, he began receiving monthly IV infusions as part of the study. The trial is blinded, so Nick does not know if he is receiving the new medicine or the standard of care. Still, his motivation remains clear: to help advance treatment for others living with MS. He feels good and views participation in the trial as a way to give back and to be part of something that could make a meaningful difference for future patients. “'I’m happy to be doing something to help other people who have MS,” says Nick. “I believe the mind is a powerful thing, and if you are focused on getting better, no matter how, you will get better.”
Today, despite some challenges—including arthritis and sensitivity to cold—Nick remains active and committed to staying positive. He goes to the gym three times a week, stays engaged in his community, and uses a cane to help maintain his independence. He has also given back in other ways, serving as a National MS Ambassador and MS Foundation Ambassador, and has even taught Zumba and chair Zumba classes for people with MS.
Nick credits his care team at Holy Name for guiding him toward the clinical trial and believes strongly in the power of mindset. He is hopeful that his experience will help bring new treatments to people living with MS and improve lives for years to come.
